The Rochester Rookies is a team of athletes that bring their individual abilities and disabilities together to create one incredible team.  Physical disabilities include, but are not limited to, cerebral palsy, neuro muscular diseases, muscular dystrophy, spina bifida, spinal cord injuries, etc.


A Journey Called Spina Bifida



Copied from You Tube sweetligem





Greater Rochester Spina Bifida Association

Supporting families since 1972


Mission Statement:

"We are a non-profit organization made up of individuals with Spina Bifida, their families and other community members who work together to promote the physical, emotional and social well-being of all peole with Spina Bifida and all disabilities, though programs, events and services in the Greater Rochester, NY region, which provide outreach, education and advocacy."


Programs and Services:

Social Events: Swimming and bowling parties and summer picnics

Youth and Adult Alliance: Includes social events and discussion groups

Scholarships: To assist with college and/or vocational training costs/fees

Sunshine Fund: Help for families and individuals during difficult times

Family Out-Reach: Information and referrals

Parking Passes: For families during appointments and hospitalizations

Non-Reimbursable Medical Expense Fund: Assistance with some non-insurance covered costs


Contact Information:

Facebook : Greater Rochester Spina Bifida Association


Mail: PO Box 3, Fairport, NY 14450

Phone: (585) 381=5471


Presently serving over 100 families in the Greater Rochester area.



Spina Bifida Awareness Video


Copied from You Tube Amanda Ridding


Facts About Spina Bifida:

It is the #1 permanently disabling birth defect in the USA

It is known as a "Neural Tube" defect

It occurs during the first month of pregnancy when the spinal cord fails to come together properly

It causes varying degrees of paralysis and multiple medical issues (orthopedic, neurologic, urologic, digestive, respiratory, etc.)

Multiple surgeries are necessary. The first neurosurgery is done within hours after birth.

Hydrocephalus (water on the brain) develops in 80% of children born with Spina Bifida - requiring brain surgery soon after birth

There are more than 180,000 individuals with Spina Bifida living in the United States.

7 in every 10,000 children born in the United States are born with Spina Bifida

60 million women are at risk of giving birth to a child with Spina Bifida

Taking folic acid supplements during child bearing years can reduce the incidence of this birth defect by 70%

The cause of spina bifida is unknown. Scientists believe it's a combination of genetics and environmental factors acting together


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