The Rochester Rookies is a team of athletes that bring their individual abilities and disabilities together to create one incredible team. Physical disabilities include, but are not limited to, cerebral palsy, neuro muscular diseases, muscular dystrophy, spina bifida, spinal cord injuries, etc.
A Journey Called Spina Bifida
Copied from You Tube sweetligem
Greater Rochester Spina Bifida Association
Supporting families since 1972
"We are a non-profit organization made up of individuals with Spina Bifida, their families and other community members who work together to promote the physical, emotional and social well-being of all peole with Spina Bifida and all disabilities, though programs, events and services in the Greater Rochester, NY region, which provide outreach, education and advocacy."
Programs and Services:
Social Events: Swimming and bowling parties and summer picnics
Youth and Adult Alliance: Includes social events and discussion groups
Scholarships: To assist with college and/or vocational training costs/fees
Sunshine Fund: Help for families and individuals during difficult times
Family Out-Reach: Information and referrals
Parking Passes: For families during appointments and hospitalizations
Non-Reimbursable Medical Expense Fund: Assistance with some non-insurance covered costs
Facebook : Greater Rochester Spina Bifida Association
Mail: PO Box 3, Fairport, NY 14450
Phone: (585) 381=5471
Presently serving over 100 families in the Greater Rochester area.
Spina Bifida Awareness Video
Copied from You Tube Amanda Ridding
Facts About Spina Bifida:
It is the #1 permanently disabling birth defect in the USA
It is known as a "Neural Tube" defect
It occurs during the first month of pregnancy when the spinal cord fails to come together properly
It causes varying degrees of paralysis and multiple medical issues (orthopedic, neurologic, urologic, digestive, respiratory, etc.)
Multiple surgeries are necessary. The first neurosurgery is done within hours after birth.
Hydrocephalus (water on the brain) develops in 80% of children born with Spina Bifida - requiring brain surgery soon after birth
There are more than 180,000 individuals with Spina Bifida living in the United States.
7 in every 10,000 children born in the United States are born with Spina Bifida
60 million women are at risk of giving birth to a child with Spina Bifida
Taking folic acid supplements during child bearing years can reduce the incidence of this birth defect by 70%
The cause of spina bifida is unknown. Scientists believe it's a combination of genetics and environmental factors acting together